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Navigating the complexities of Sickle Cell Disease SCD extends beyond medical intervention; it involves shaping a lifestyle that empowers those who are affected by it. In the United States, over , individuals live with SCD, with a significant proportion belonging to the African American community or having African ancestry Yusuf et al. These individuals face multifaceted challenges that extend beyond physical health issues to include significant socioeconomic obstacles and pronounced disparities in healthcare access Hassell, ; Brousseau et al. Amidst this scenario, there is a growing recognition of the vital role that tailored exercise regimens can play. These personalized fitness programs are emerging as a key strategy for enhancing the quality of life and health outcomes for those living with SCD. These personalized exercise routines not only maintain physical health but also symbolize defiance against the challenges of the disease, showcasing the resilience and enduring strength of those affected. Traditionally, individuals with Sickle Cell Disease SCD have been advised to approach exercise with caution due to the potential for increased oxygen demand and dehydration, which could trigger sickle cell crises Connes et al. However, recent shifts in perspective highlight the advantages of moderate, consistent physical activity in the management of SCD. Such exercise is now recognized for its benefits, including enhanced cardiovascular health, improved endurance, and more efficient oxygen use Blomqvist et al. These improvements can significantly reduce the frequency and severity of crises, emphasizing the importance of physical activity as a key component of a comprehensive SCD management strategy. The combination of specific healthcare measures, such as pain management with analgesics, and tailored exercise programs offer a promising approach to improving crisis management and the overall quality of life for those with SCD. Given that Sickle Cell Disease SCD primarily impacts individuals of African descent, it is crucial to recognize that these individuals often possess unique physiological characteristics, such as a higher center of gravity and longer limbs. These differences should be carefully considered when designing exercise regimens for managing SCD. Specifically, the center of gravity is, on average, about three percent higher in Black individuals compared to Caucasians Bejan et al. Tailoring exercises to align with the distinct body structures of individuals of African heritage can significantly enhance the safety and effectiveness of these workouts. For instance, exercises that take advantage of longer limbs, like squats and lunges, can be especially beneficial, offering potentially greater benefits tailored to their physique. By customizing exercise programs with these physiological considerations in mind, they not only become culturally sensitive but also physiologically appropriate, vastly improving the potential for enhancing the quality of life for those living with SCD. A regimen of daily walks, each lasting 30 minutes and performed five times a week is highly recommended for those diagnosed with thalassemia major Arian et al. This carefully crafted exercise protocol underscores the remarkable advantages of engaging in simple, cost-effective, and universally accessible physical activities for managing similar blood disorders. Its pivotal contribution lies in its ability to significantly elevate the quality of life for these individuals, attributed to both its straightforward nature and the minimal effort required for adoption. Walking, therefore, stands out as an exemplary approach to enhancing health outcomes, marking its significance as a fundamental practice in the strategic management of SCD and the improvement of patient life quality across related conditions. An 8-week aerobic exercise regimen, comprising three one-hour sessions weekly, has shown positive effects for patients with Sickle Cell Disease, according to Rossi et al. It starts with a minute segment focusing on movements involving large muscles and flexibility exercises. This is followed by a core phase where participants engage in walking exercises that become progressively more challenging. The session concludes with a relaxation phase lasting 10 to 15 minutes, emphasizing light bodyweight exercises and flexibility. Tailored specifically to adhere to the recommended guidelines for low-intensity activity in Sickle Cell Disease management, this regimen offers customized adjustments to help avoid triggering a crisis. The notable benefits include enhanced cardiac efficiency, increased functional capacity, and improved overall quality of life, without any negative side effects. This underscores the efficacy of mild to moderate physical activities as a safe and effective method for managing SCD symptoms and boosting patient well-being. In addition to physical exercises, the integration of mental exercises into the care regimen for individuals with Sickle Cell Disease SCD is crucial. It employs a systematic approach of intentionally tensing and then gradually releasing various muscle groups, one after the other, inducing a profound state of both physical and mental relaxation. The integration of PMR with conventional analgesic treatments significantly enhances pain management efforts, underscoring the effectiveness of this relaxation technique in improving patient well-being. The adoption of such accessible and cost-effective methods into the treatment plan for sickle cell anemia is a critical move towards enhancing the quality of life for those affected, thereby underlining the importance of a holistic approach that caters to both physical and mental health requirements. This technique can therefore offer an insightful parallel to managing Sickle Cell Disease. Sessions, lasting minutes conducted at intervals of 2 to 3 days and practiced twice daily bring optimal outcomes. Engaging in this routine twice per day fosters deep relaxation, which potentially mitigates psychological stressors such as anxiety and aggression commonly experienced by those grappling with SCD. This approach therefore serves to not only alleviate the direct symptoms associated with SCD but also to enhance the overall quality of life by reducing the need for anxiety and pain medications. Incorporating a broad spectrum of exercise programs into the treatment regimen for men with Sickle Cell Disease SCD offers a comprehensive method for confronting both the physical and psychological hurdles posed by the condition. This multifaceted strategy, which includes the integration of tailored, low-intensity aerobic exercises alongside progressive muscle relaxation techniques, ensures accessibility and personalization in managing SCD. Emphasizing the importance of individualized exercise routines, this approach not only addresses specific needs but also prioritizes safety during engagement in these activities, ranging from mild to moderate intensity. Such careful consideration underscores the significance of a balanced and well-considered plan in enhancing the overall well-being of individuals with SCD. With most patients managing their pain at home, the severity of their suffering is often underestimated by healthcare providers, leading to a treatment gap. Against this backdrop, cannabis—also known as marijuana, pot, or Mary Jane—emerges as an innovative approach that is utilized by some of the individuals grappling with Sickle Cell Disease to alleviate the severity of their painful episodes. However, the pressing question remains: Is it safe? Marijuana contains a wealth of cannabinoids, including tetrahydrocannabinol THC and cannabidiol CBD , which show remarkable potential in pain management, particularly for those grappling with Sickle Cell Disease. THC, the main psychoactive element in marijuana, stimulates the release of dopamine, a neurotransmitter linked to pleasure, in the brain Bloomfield et al. These interactions are crucial in moderating pain and inflammation, particularly in SCD, where they represent the primary symptoms. Smoking is the most preferred form of cannabis administration Curtis et al. However, for individuals with Sickle Cell Disease SCD who may already be facing respiratory challenges, including Acute Chest Syndrome, this practice could further aggravate their condition. This calls for the urgent need for further research to determine if alternative methods of administration, such as cannabis extracts, might be more effective and safer in managing pain for those with Sickle Cell Disease. The study further revealed that marijuana contributes to deteriorating changes in sleep, mood, mental state, energy, and appetite. Cannabis withdrawal syndrome manifests when individuals experience symptoms such as heightened anxiety, disrupted sleep patterns, diminished appetite, restlessness, a sense of depression, and increased aggression. If these symptoms are severe, they can potentially metamorphize into Cannabis Use Disorder. This arises when individuals attempting to reduce or quit cannabis face intensified symptoms, making it difficult to break free from the cycle. Ultimately, this heightened severity can lead individuals to misinterpret the symptoms and associate them with their medical conditions. Consequently, it sets off a challenging cycle of increased cannabis use that is hard to break. According to ProCon. As a result, individuals with SCD seeking pain relief may face potential risks when resorting to marijuana products sourced from unofficial channels. The situation is further complicated by the fact that adults with Sickle Cell Disease SCD often turn to cannabis due to receiving insufficient opioid dosages from their medical caregivers. Additionally, they face increased stigmatization when seeking higher doses of these analgesics, coupled with a lack of alternative options for pain relief Sinha et al. The management of pain associated with Sickle Cell Disease presents a significant challenge within the medical community, with cannabis emerging as a prospective yet intricate solution. Although numerous studies have indicated favorable outcomes, the presence of contradictory results alongside the absence of formal approval by the Food and Drug Administration FDA accentuates the imperative for further extensive research into the effectiveness and safety of cannabis for pain relief in SCD. Furthermore, the necessity to achieve a delicate balance between efficacious pain management, enhancement of mood, and the mitigation of potential adverse effects underscores the critical importance of individualized medical decisions. This is particularly pertinent given the stigmatization and difficulties encountered by adults with SCD in the hands of their healthcare providers. In , Dr. Upon moving to Michigan, she became a child welfare specialist in foster care and adoptions at Bethany Christian Services. Grier soon went on to attend Western Theological Seminary, becoming the first African American female to graduate with the Master of Divinity degree in and the Doctorate of Ministry degree in Setshabelo Family and Child Services works with local churches to provide loving homes for orphans and vulnerable children within their community as an alternative to orphanages. Recently Denise encapsulates her work and interests in the 1cor13project. The U. The Conversation notes 11 million older adults are struggling to make ends meet, and skip much needed healthcare as a result. The numbers are worse for older people of color, and the national disparity between Black and white economic insecurity is 17 percentage points. The inaccessibility of healthcare is thus shown to disproportionately impact people of color and other marginalized groups. Statistics show that African-Americans bear the brunt of these healthcare challenges. Furthermore, the death rate from Covid for older Black adults was more than twice the rate of older white adults. Experts have thus confirmed the pervasiveness of underlying health conditions within the African American community. In particular, gaps in wealth limit their access to the commercialized healthcare system. Maryville University suggests that senior poverty has the potential to get even worse in the future. The median net worth of U. Acquiring a high-paying job and overcoming poverty is easier said than done, too. They are also less likely to own a home and other assets, which reduces their ability to build wealth. Seniors bear the biggest brunt of these effects, having survived their youth in a community that had even less access to wealth than it does today. This further puts people of color at disadvantages that can extend throughout their lifetime and pass onto future generations. As society progresses, means to help everyone build financial security for retirement have been developed. However, progression can go two ways, for the better or worse. This allowed states to expand eligibility for Medicaid to everyone below percent of the FPL, and from to , the coverage gap between Black and white adults dropped by 4. In , though, national progress stalled under the Trump administration and coverage eroded for all groups. This goes to show that systemic change is the key. This includes investing in public education, ensuring fair access to stable employment, and promoting financial literacy. Government assistance programs such as SNAP benefits for food and housing subsidies, and the foundations of a secure retirement, Medicare and Social Security, must be improved as well. Individuals can join the call and spread awareness in their own capacity, too. As seen by ACA in , the movement towards better healthcare for African-American seniors will naturally be inclusive of other demographics. It is thereby key that we collectively champion the rights of our seniors and African-American communities, in order to improve the lives of all. Misti Stanton is a fresh voice in diversity in Michigan. After more than 30 years of community and non-profit work, she currently serves as the Vice President of Diversity, Equity and Inclusion for Mercantile Bank. She devotes her time and energy to cultivating an inclusive work environment in a rapidly-growing organization. Misti is passionate about health equity, advocacy, and community empowerment. She has dedicated her career to improving the lives of others. She lives by the philosophy that community service impacts the health and well-being of our region. In her spare time, Misti volunteers for a variety of community organizations and advocates for youth literacy and community empowerment. Mia is active in the community and serves in many leadership roles. She is married to Dwight L. Gutridge, Pastor of St. Luke A. Zion Church in Grand Rapids. Today, as the video footage of the killing of Patrick Lyoya is released, collectively we will most likely feel shock, sadness and outrage. An act like this inflicts trauma on our entire community. This includes the following:. It also means making choices about what actions you need to take to support yourself and your family. Some may choose to watch the video and some may NOT choose to watch the video; both are your ultimate choice. If you do choose to watch, please do the following:. That being said, we encourage employers to acknowledge the potential impact of this event on your employees and what you can do to honor and protect them. Please allow them grace and flexibility as they navigate this traumatic event that happened in our city. Violence, racism and systemic bias are not new issues, they are ongoing crises and at times like this, they become flashpoints for change. We encourage you to take this opportunity to practice self-care, self-empowerment and to stand with us as we fight for a better and safer community. We are honored to join more than churches, faith-based and community-based organizations to stand together to raise awareness of the current situation in our hospitals; issue a public statement of our commitment to help; and pray for the blessing of our healthcare workers and their families. Yesterday we safely gathered at the Mercy Health St. Eliminate all non-essential, indoor gatherings. Restrict essential gatherings to less than 50 people per 2, square feet. Require all attendees at indoor gatherings to wear a mask and abide by social distancing and appropriate COVID hygiene. We invite you to join us in this commitment. We have developed a panel of clinicians from our community that will be able to help answer any of your questions related to COVID vaccinations. The panel will come together virtually on Wednesday, January 26th at am and 6 pm. We hope this panel helps you make an informed decision. As an organization committed to improving the health and well-being of all in our community, the Grand Rapids African American Health Institute has always acted in the best interests of our community. The recent surge of positive tests, hospitalizations, and tragic deaths attributed to the COVID virus dictate that we alter our plans to ensure the health and safety of our attendees, honored guests and their families. We believe securing our new date of April 21, for the event is the most responsible course of action and will enable us to direct our energies in addressing the current surge along with our community partners. Magazine has recognized businesses, organizations and leaders who champion diversity, equity, and inclusion initiatives and achievements within their organization or the community. TheGrand Rapids African American Health Institute is a leading national organization devoted to achieving healthcare parity for African Americans through advocacy, education, and research. She lives in Holland, Michigan, with her two biological children Gezelle and Chris. A look through the medical facts Statistics show that African-Americans bear the brunt of these healthcare challenges. The crucial factors Experts have thus confirmed the pervasiveness of underlying health conditions within the African American community. What can be done As society progresses, means to help everyone build financial security for retirement have been developed. A Call for Healing and Wellness Today, as the video footage of the killing of Patrick Lyoya is released, collectively we will most likely feel shock, sadness and outrage. This includes the following: Prayer Meditation Spending quality time with family and friends Turning off social media, and whatever else you need to assist in protecting your overall mental health and wellness. If you do choose to watch, please do the following: Make sure you set healthy boundaries around the viewing. Ensure you have support to help you process the video. Older posts. Quick Links. Community Programs. Connect with Us. Facebook Youtube Linkedin Instagram. We do not, and shall not, discriminate on the basis of race, color, religion, gender, gender expression, age, national origin, disability, marital status, sexual orientation, or military status in any of our activities or operations. We are committed to honesty AND transparency. 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