Spina Bifida Association Malaysia (SIBIAM) was set up in 2007 as a non-profit organisation to look after the interest of children and adults with Spina Bifida and its related disorders. SIBIAM aims to improve the life chances of persons with Spina Bifida through practical and meaningful projects. Thus, we look to work collaboratively with parents, volunteers and medical personnel in representing the Spina Bifida community in Malaysia. We are also grateful for the support from our sponsors who work hand in hand with us to reach out to more Spina Bifida children and their family members. We work towards helping people with Spina Bifida realise an active, meaningful and independent life as members of the community through the following projects and programmes: Building a resource centre Creating awareness and Spina Bifida prevention campaigns Therapy and counseling services Revolving equipment library ( wheelchairs, standing frames, orthotics etc) Subsidy for catheters, catheter bags, diapers
Education & Career guidance workshops etc. 21 Lorong Datuk Sulaiman 7Taman Tun Dr Ismail60000 Kuala LumpurMalaysiaOverview of where to go and what to do if you are mobility, sight or hearing impaired - a wheelchair or cane user - and living in or visiting Malaysia... Persons with Disabilities Act (PWDA) Malaysia has many non-profit organisations and government departments which provide services for people with disabilities. In 2008 the Persons with Disabilities Act (PWDA) act was passed by parliament. The Act ensures access for the disabled to public facilities, transport and recreation, leisure and sport services. As part of the Act, building by-laws were amended making it compulsory for buildings to provide access and facilities for disabled people. Existing buildings were allowed three years to make the necessary modifications to comply with these new requirements. Malaysia has strict anti-narcotic laws. People who take any type of medication are strongly advised to carry a written note from their doctor and to keep all medications in their original prescription bottle or box.
It can be a frustrating or even hazardous experience for a person with disabilities to get around in Malaysia, with the exception of some new public transport services. Potholes, drain covers, cracked sidewalks and curbs can all be problematic. Pavements, which also serve as sitting areas also create obstacles for wheelchairs. New wheelchair accessible buses have been introduced, but existing services have not been adapted. Many bus and train stations are not yet fully accessible to people with limited mobility. The most convenient way for disabled travellers to get round is by taxi. However, taxi drivers may charge extra for taking a wheelchair and providing assistance. Some drivers may refuse service. It can be easier to charter a taxi by the day. National Organisations for People with Disabilities Kiwanis Disability Information and Support Centre (KDSC): The Centre provides a wealth of information for people with disabilities including charitable support organisations, government contacts and factsheets
Tel: 012 210 0679 / 019 663 8288 Alzheimer's Disease Foundation of Malaysia (ADFM): Promotes awareness of Alzheimer's Disease and helps dementia patients and their families At: 14 Lorong Utara A, (P.O.Box 28) 46200 Petaling Jaya Tel: 03 7958 1522 Fax: 03 7958 1507 Open: Monday to Friday 08:00-17:00 Malaysia Information Network for the Disabled (MIND): Promotes awareness, availability and accessibility of information to help people with disabilities live, learn, love, work and play independently At: Unit 3-B, Bangunan Bakti Siti Hasmah, No. 6, Cangkat Abang Haji Openg, Taman Tun Dr Ismail, 60000 Kuala Lumpur Tel: 03 7724 2655 Malaysian Confederation of the Disabled (Gabungan Persatuan Orang-orang Cacat Malaysia) At: c/o 931 Jalan 17/38, 46400 Petaling Jaya, Selangor Tel: 03 7956 2300 / 03 7956 9030 Fax: 03 7960 2615 Malaysian Association for the Blind (MAB): The premier voluntary organisation serving visually impaired people
At: Kompleks MAB, Jalan Tebing, Off Jalan Tun Sambanthan 4, Brickfields, 50471 Kuala Lumpur (PO Box 10687, 50722 KL) Tel: 03 2272 2677 Fax: 03 2272 2676 Malaysian Braille Press (MBP): Part of the National Council for the Blind. Prints Braille books upon request and is a major supplier of Braille books and school texts At: 94A, Jalan Padang Belia, Brickfields, 50470 Kuala Lumpur Tel: 03 2272 4726 Fax: 03 2273 4786 / 2274 3914 Malaysian Federation of the Deaf (MFD) (Persekutuan Orang Pekak Malaysia): A national coordinating body for all deaf organisations in Malaysia At: 6-13A, Menara KLH, Bandar Puchong Jaya, 47100 Puchong Tel: 03 8070 9308, and 03 8070 8930 Fax: 03 8076 1090 Malaysian Mental Health Association (MMHA): Advocates for positive attitudes toward mental health issues; At: 1, Jalan 3/66, 46000 Petaling Jaya, Selangor Tel: 03 7782 5499 Fax: 03 7783 5432 The Malaysian Mentalink Foundation: Provides counselling services, rehabilitation and other therapies
Tel: 03 7781 0162 / 019 257 5552 Malaysian Parkinson's Disease Association (Persatuan Parkinson Malaysia): Provides direct services to patients and their families, with practical advice on coping with problems At: 1, Jalan Seri Petaling 17, Seri Petaling, 57000 Kuala Lumpur Tel: 03 2096 2246 Open: Monday to Friday 09:00-17:00 Malaysian Spinal Injury Association (MASIA): A national organisation for spinal injured individuals of all races and from all walks of life, resident in Malaysia At: 19 Jalan 5/7, 46000 Petaling Jaya, Selangor Tel: 03 9080 3198 Fax: 03 9080 3198 National Council for the Blind, Malaysia (Majlis Kebangsaan Bagi Orang Buta, Malaysia): Activities include the promotion of employment, sports and recreation for the blind, Braille library services and the prevention of blindness At: 94B, Jalan Tun Sambanthan, Brickfields, 50470 Kuala Lumpur Tel: 03 2272 4959 / 03 2273 5508 Fax: 03 2272 4960 Open: Monday to Friday 09:00-17:00;
Support Groups and Associations for Children MyADHDSupport (Online LD Parent Support Group): Helping families with information, resources and support for ADHD, ADD, Dyslexia, Dyspraxia, OCD and other related disabilities Malaysian Down Syndrome Association (Persatuan Sindrom Down Malaysia - PSDM): Promotes the welfare of people with Down Syndrome and assistance to parents and families At: 79, Lingkungan U-Thant, 55000 Kuala Lumpur Tel: 03 4257 9818 Fax: 03 4257 9818 National Society for the Deaf Malaysia (Persatuan Kebangsaan Pekak Malaysia): Focuses on teaching children communication and daily life skills, and how to cope with their disability At: 25A, Jalan Kampung Pandan, 55100 Kuala Lumpur Tel: 03 9287 0739 Fax: 03 9287 0739 National Autistic Society of Malaysia (Persatuan Kebangsaan Autisme Malaysia): Provides early intervention and other programmes for children with Autism aged 0 - 17 years At: 4, Jalan Chan Chin Mooi, Off Jalan Pahang, 53200 Kuala Lumpur