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The video could not be loaded, either because the server or network failed or because the format is not supported.
Published: 14:26 BST, 14 November 2013 | Updated: 08:36 BST, 15 November 2013
A teenager has spoken of her 'total shock' at being told at the age of 17 she had no vagina.
Jacqui Beck, 19, has MRKH, an rare syndrome which affects the reproductive system - meaning she has no womb, cervix or vaginal opening. 
She was only diagnosed after she went to her GP about back pain - and mentioned in passing that she hadn't started her periods.
Shock: Jacqui Beck was told at the age of 17 she had no vagina. She was diagnosed with MRKH, an unusual syndrome which affects the reproductive system - meaning she has no womb, cervix or vaginal opening
Tests revealed her condition and that where her vagina should be, there is simply an ident, or 'dimple' - meaning she is unable to have sex or carry her own child.
Women with the condition appear completely normal externally - which means it is usually not discovered until a woman tries to have sex, or has not had her first period.
Miss Beck, from the Isle of Wight, admits when she was first diagnosed, she felt 'like a freak'.
'I'd never considered myself different from other women and the news was so shocking, I couldn't believe what I was hearing.
‘I was sure the doctor had got it wrong, but when she explained that was why I wasn’t having periods, it all started to make sense.
‘She then explained that I would never be able to carry a child and might have to have surgery before I could have sex.
‘I left the doctors in tears - I would never know what it was like to give birth, be pregnant, have a period. All the things I had imagined doing suddenly got erased from my future.
'I was really angry and felt like I wasn’t a real woman any more.'
Unaware: Miss Beck explained she has a 'dimple' where her vagina should be so from the outside it looks normal - hence why the condition wasn't detected in her younger years
Unexpected: Miss Beck was only diagnosed after she went to her GP about back pain - and mentioned in passing that she hadn't started her periods. Tests revealed her condition, which means she is unable to have sex or carry her own child
Because she had never attempted to have a physical relationship, Miss Beck had never noticed the problem herself. Had she tried, she would have discovered it was impossible for her to have sex.
MRKH (Mayer Rokitansky Küster Hauser) is a congenital abnormality which affects one in 5,000 women in the UK.
It is characterised by the absence of the vagina, womb and cervix.
Women suffering from the condition will have normally functioning ovaries and so will experience the normal signs of puberty but will not have periods or be able to conceive.
The external genatalia are completely normal which is why MRKH isn’t usually discovered until women are in their teenage years.
It’s usually discovered when the woman tries to has sex or fails to get her period.
Many women are able to create a vaginal canal using dilation treatment, which uses cylinder shaped dilators of different sizes to stretch the muscles.
However, if this is unsuccessful then surgery will be used to stretch the vaginal canal.
Following treatment women are able to have intercourse and can have their eggs removed and fertilised to be used in surrogacy.
She said: 'I t wasn’t really a conscious decision not to have a boyfriend, I just didn’t really fancy any of the boys in my area, which is lucky, considering what I know now’.
MRKH affects one in 5,000 women in the UK. Most discover they have the condition because they haven't started their periods, but some find out when they struggle to have intercourse.
Miss Beck explained she has a 'dimple' where her vagina should be so from the outside it looks normal - which explains why the condition wasn't detected earlier.
Despite the shocking news, she is trying to see her condition in a positive light - and even as a way of making sure she meets the right man.
She said: 'If he has a problem with it, then he’s not the kind of guy I want to go out with.
'I ’m a hopeless romantic and I see it as a great test of someone’s character. Instead of focusing on it putting off men, I actually think it will help me find, “the one”.
'I want to be upfront with any men I meet and tell them straight away about my condition. I don’t want them to feel tricked into being with me.
‘I will feel more comfortable if they know the truth and besides, if they run at the mention of MRKH then I don’t want to be intimate with them.'
She says that as a teenager, she was blissfully unaware of her condition - with no idea that the development she was waiting for would never happen.
'When I was 14, my friends started talking to me about their periods. They started carrying tampons around, complaining about cramps and sharing notes on what it was like.
‘For a year I waited to go through the same, until at 15, everyone I knew had started their period apart from me.
Despite the shocking news, she is trying to see her condition in a positive light - and even as a way of making sure she meets the right man. She said: 'If he has a problem with it, then he’s not the kind of guy I want to see'
‘I didn’t panic though, I’m tall and skinny and thought that might be something to do with me being a late developer.’
Instead, she focused on her future and when she was 17, applied to attend a music college in Guildford.
But after suffering from pain in her neck in summer 2012, she went to see her GP.
'While I was there, I mentioned I hadn’t started my period yet. I still wasn’t overly worried but I thought it was worth saying something
‘My doctor was very surprised but didn’t seem to think it was serious. He just suggested that he would do some scans to see what the problem was.'
Hindsight: Miss Beck says that as a teenager, she was blissfully unaware of her condition - with no idea that the development she was waiting for would never happen
Women with MRKH appear completely normal externally - which means it is often not discovered in childhood, but in the teenage years
When scans showed nothing, she was referred to a gynaecologist, who immediately spotted something was wrong.
Miss Beck said: ‘My other scan results had been sent to her and just from looking at them, she knew I had MRKH.
‘She sat me down and basically explained that I didn’t have a womb, or a vagina, that I was born without them and instead just had a small dimple in it’s place.'
So mortified by what she had heard, she was too embarrassed to admit to family and friends she had the condition - let alone the prospect of telling any future boyfriends.
She said: ‘I was too embarrassed to call my mum and talk it through with her, so instead, I sent her an email.
Help: Miss Beck is now undergoing treatment to help her try and have intercourse in the future
'She called straight back and came over to Guildford the next day from the Isle of Wight.
‘Although mum was upset for me, she tried to focus on finding out as much about the condition as possible, so we could understand it.
‘She also encouraged me to focus on the bright side. We laughed as we listed all the things I wouldn’t have to go through, period cramps, childbirth, smear tests - to try and look on the bright side.’
Focusing on her treatment, Miss Beck was admitted to the Queen Charlotte and Chelsea Hospital in London, which specialises in the condition.
There, she was given dilation treatment, which involved using different sized dilators to try and stretch her vaginal canal - but was told if it didn’t work, she would have to be operated on.
Honest: Miss Beck says she now wants to speak out about her condition to raise awareness of it
She said: ‘I spent two days there, getting taught how to use the dilator and learning more about MRKH.
‘The first time the nurse showed me how to use a dilator I nearly died of embarrassment. But now I've got used to it, I see it as any other form of treatment.
‘At the hospital, they referred me to a network of other women who have the same condition. It was great to speak to other girls who felt like me.
‘I stopped feeling so lonely and it also gave me hope as I spoke to women who had gone on to have a full sex life.’
Thankfully, her treatment has worked and if she continues she will not need surgery and when she chooses to, will be able to have intercourse.
Further down the line there are more difficult conversations she will have to have to have when she wants to have children.
She said: ‘I’m not at an age when I’m thinking about kids, but I think that will hit me later on. I will use a surrogate, or adopt, but I will have to make sure any guy I meet is ok with that too.
‘Again, I try and take it as a blessing that, unlike woman who discover they can’t conceive when they are already trying for a baby, I have time to get used to the idea.’
For Miss Beck, her one hope is that the condition becomes more well known, so that other women realise they have it earlier than she did.
‘I had only told five of my best friends, but then I realised it’s not something I should be ashamed of.
‘If I had cancer, or, any other medical issue, people would be supportive. So, I recently came out to everyone on Facebook, telling them about my condition.
‘I was surprised at how positive everyone was, they said I was brave and beautiful, now I wish I had been open about it from the beginning.’
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Breaking the Hymen: 9 Facts about Hymens and the Concept of Virginity
Why “popping the cherry” actually has little to do with sex. 
How to Know if You're Ready to Have Sex
First-Time Sex: 20 Questions About Losing Your Virginity, Answered
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The concept of " virginity " for people with vaginas has a complicated history, and has often been (incorrectly) linked to breaking the hymen. Bleeding after sexual intercourse was incorrectly thought to be proof of an unbroken hymen, and thus, proof that a person had not had sex before. The reality, however, is that the state of your hymen has nothing to do with sexual activity. 
With the help of Dr. Jessica Shepherd , a board-certified ob-gyn and a spokesperson for Paragard, and Alexandra Eisler , a health and sex educator from Healthy Teen Network, we're going to separate fact from fiction and explain what a hymen is, how a hymen breaks, and its complicated relationship with the historical concept of virginity. Read on for 9 facts you need to know about this tiny tissue. But first, let's get our definitions clear:
"The hymen is a thin membrane that surrounds the opening to the vagina ," explains Dr. Shepherd. The hymen is just a portion of the vaginal canal that really doesn't serve a purpose. It has no known biological function and it does not, in any way, indicate whether or someone has engaged in sexual activity. 
The hymen can be broken in a variety of ways. Sexual activity (including penetration, oral sex, fingering, and masturbation ) can break the hymen, yes, but so can the insertion of a tampon or even exercising. It's also worth noting that you can break your hymen without even knowing it. Dr. Shepherd explains that it's entirely possible to disrupt the hymen during a weight-bearing exercise and not feel a thing. It's also possible to notice a bit of bleeding and tenderness. It's different for everyone. 
It is possible to engage in sexual activity without breaking the hymen. It's very possible that the hymen could not be broken during fingering or oral sex, explains Dr. Shepherd. It's even possible (though uncommon) to have intercourse without breaking the hymen. 
It bears repeating: the presence or absence of a hymen does not prove or disprove whether someone has engaged in sexual activity.
If you try to look at an intact hymen, it may be difficult to pinpoint. “If you don’t know what you’re looking for, you’d have a really hard time telling the difference, because it will be a fleshy colored membrane in a place where you have flaps and folds and hair,” Eisler says. If you do want to go exploring, though, it's located about about 1-2 centimeters inside your vaginal opening.
Hymens are not one-size-fits-all. There are actually five types of hymen which are medically classified as: 
Normal: hymen with a generally crescent shaped opening.
Cribriform: hymen with several small openings through which menstrual blood can flow.
Imperforate: hymen with no opening at all.
Microperforate: hymen with extremely small opening.
Septate: hymen with a thin band of tissue in the center.
Imperforate, microperforate, and septate hymens interfere with menstrual flow and tampon use. In these cases, you can have a minor surgery (called a hymenectomy) to remove the extra tissue and open up the hymen so period blood can flow through. This is performed by a gynecologist. 
Once a hymen is broken, either naturally or through a hymenectomy, it will not grow back. 
According to Eisler, virginity is a social construct, not a medical condition. “While there is no medical definition for virginity, it is an important concept to many people,” she says. “It's built by social norms and beliefs, even if it doesn't have a scientific basis.” 
So you likely have a definition about what virginity entails based on your friends, what your parents have taught you, and whether or not you have specific religious beliefs. To many, virginity means you haven’t yet had sex, though what is considered sex can vary from person to person. It should also be said that having sex doesn't change anything about you; it doesn't add or take away value, just as not having sex doesn't.
The concept of virginity has long been tied up with the heteronormative idea that when a penis enters your vagina, you’re no longer a virgin. There are some obvious problems with this definition. “It gets ridiculous when you think, okay, if someone is a lesbian, knows they’re a lesbian from day one, and has never had penetrative sex, are they going to be a virgin until the day they die?" Eisler says. "If someone only has anal sex but not vaginal sex, are they still a virgin? I’m really clear with folks, that when we say sex, we mean oral, anal, or vaginal sex.”
You should never feel you have to prove your status, and furthermore, it's not even possible to do so. We would argue that the best way to find out if someone has not yet had sex (if they really care to know) is simply to ask — and it's entirely up to you whether or not you want to discuss it at all!
There are some major problems with the concept of " losing your virginity ." The term implies that it isn’t in your control . If you lose your phone, is that a conscious decision? No! We need to change how we talk about the first time a person has sex. It shouldn’t be something that someone takes from you. 
“[I don’t like] this idea that young women should be passive receivers of sex,” Eisler says. In too much of the world, women are still controlled in this way. “The most important thing is to keep yourself safe, and do what you feel good about,” Eisler recommends. “Take it slow and really know what sexual experiences are really comfortable for you and your body, what’s going on down there and relax about a lot of it.” And for sure, don’t worry about your hymen. Or lack thereof.
WATCH: 8 Fascinating Facts About the Vagina That Will Change Your Life
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https://www.dailymail.co.uk/health/article-2507167/The-girl-vagina-Teenager-19-sex-babies-rare-condition-left-reproductive-organs.html
https://www.teenvogue.com/story/facts-about-hymen-and-virginity
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