Spina Bifida Having Sex

Spina Bifida Having Sex
Aug 27, 2025
Apr 19, 2024
A pediatric urologist who cares for women with spina bifida (CSS), a sex therapist, licensed social worker, and sexual health researcher with qualitative research expertise (DW), and two undergraduate students trained in qualitative research methods for the purpose of this study (CS and VG), participated in data acquisition and analysis.
Explore information about sex and relationships for individuals with spina bifida. Shine Charity offers support and guidance for a healthy, fulfilling life.
Spina Bifida & Sex: A Brief Overview Any birth defect in which the spine does not close completely is considered spina bifida. This defect typically develops during the first month of pregnancy and seems to be the result of both genetic and environmental factors. Spina bifida occurs in roughly 7 out of 10,000 live births. Of the three types of spina bifida, occulta is considered the least ...
Jan 8, 2026
To gain a better understanding of the solo and partnered sexual behaviors of men and women with spina bifida, the authors of a recent study conducted a large cross-sectional survey of an international sample of adults with this condition. A total of 345 individuals between the ages of 18-73 years old participated in the study.
Relationships and sexual intimacy are primary concerns among individuals with spina bifida. Research shows that between half and 70% of adults have participated in solo masturbation, in affectionate behaviors like kissing and hand- holding, in behaviors like manual- genital or oral- genital sex, and in penile- vaginal sex in the past year.1 It is important, therefore, that individuals with ...
Spina Bifida & Sex: A Brief Overview Any birth defect in which the spine does not close completely is considered spina bifida. This defect typically develops during the first month of pregnancy and seems to be the result of both genetic and environmental factors. Spina bifida occurs in roughly 7 out of 10,000 live births. Of the three types of spina bifida, occulta is considered the least ...
Keywords: Spina bifida, myelomeningocele, neural tube defects, sexuality, sex education, sexual health 1. Introduction Individuals with spina bifida (SB) often develop lower extremity weakness or paralysis, as well as neurogenic bowel and bladder and loss of nerve signals to and from their sex organs [1, 2, 3, 4].
Research on factors associated with mortality among infants and children with spina bifida showed maternal age, race and ethnicity, nativity, parity, plurality, infant sex, birth weight, severity of the lesion, presence of multiple birth defects, and birth year as significant predictors of mortality among those affected by spina bifida in large ...
Comprehensive guide to child health nursing, covering family-centered care, growth, and pediatric conditions. Essential for nursing students.
The question of pregnancy or having children was brought up in the context of female participants' consultations with health professionals: " As far as getting pregnant, there is no reason you can't, unless there is any other reason, unrelated to your spina bifida. " (Doctor of Participant F, female 18).
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Spina bifida impacts the sexual function of both men and women. Future studies should seek a better understanding of female sexual function and treatment, use validated questionnaires appropriately, and ultimately create a validated sexual function questionnaire specific to this population.
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If a male with Spina Bifida does not have erotic erections that are sufficient for sexual intercourse by the time he has completed pubertal development, an artificial device can be inserted surgically to allow him to do so.
Given the paucity of research on the sexuality of women with spina bifida, the purpose of this exploratory qualitative study was to discover women with spina bifida's perception of their sexuality, exposure to sex education, and personal sexual experiences.
Experts at Vanderbilt University Medical Center outline considerations to support sexual health and pregnancy to girls with spina bifida.
Medical advances in the last several decades have allowed an increasing number of children with spina bifida to reach adolescence and adulthood. As they reach puberty, girls with spina bifida face unique social and health challenges to their sexuality, such as orthopedic restrictions, continence, and pelvic floor disorders. Recent research efforts have focused on better understanding female ...
A handful of studies explore female experience with sexual and reproductive health in the clinical context of spina bifida; 4 little research has taken on this topic in males in this population. The authors engaged semi-structured, open-ended qualitative interviews to gather data from 20 young adult males with spina bifida.
Objective To assess the sexual function of women with spina bifida (SB), and to verify the factors that influence their sexual function. Methods A cross-sectional study in which a validated female-specific questionnaire was applied to 140 SB ...
Examples of questions included, "Tell me about how you first learned about sex and having babies" and "What about sex may be different for you than for someone without spina bifida?" The one-on-one interviews were conducted by 1 of 3 investigators (C.S.S., C.S., V.G.). Interviews were recorded and transcribed verbatim.
Relationships and sexual intimacy are primary concerns among individuals with spina bifida. Research shows that between half and 70% of adults have participated in solo masturbation, in affectionate behaviors like kissing and hand‐holding, in behaviors like manual‐genital or oral‐genital sex, and in penile‐vaginal sex in the past year. 1 It is important, therefore, that individuals ...
The following themes emerged regarding strategies to optimize satisfaction during sexual encounters: 1) establishing a supportive relationship prior to sexual activity; 2) discussing how spina bifida may impact sex and what expectations and precautions to consider before the first sexual encounter; 3) minimizing and preparing for bowel and ...
Spina bifida impacts the sexual function of both men and women. Future studies should seek a better understanding of female sexual function and treatment, use validated questionnaires appropriately, and ultimately create a validated sexual function questionnaire specific to this population. Streur C …
Data on sexual function of men with spina bifida (SB) is limited. We aimed to assess sexual activity and erectile dysfunction (ED) in a large international sample of men with SB.
Oct 3, 2025
Abstract Medical advances in the last several decades have allowed an increasing number of children with spina bifida to reach adolescence and adulthood. As they reach puberty, girls with spina bifida face unique social and health challenges to their sexuality, such as orthopedic restrictions, continence, and pelvic floor disorders. Recent research efforts have focused on better understanding ...
To provide urologists with a practical guide for how to provide sexual health counseling to girls and women with spina bifida. The recommendations and research of several sources were synthesized to create this guidance, including clinical guidance ...
Objectives To assess the adequacy of sex education and to determine the incidence of various difficulties encountered in relationships and sexual contact by young adults who have spina bifida (SB) with and without hydrocephalus (HC) in the Netherlands.
While women with spina bifida encounter challenges during sexual encounters, strategies focused on improving communication with partners and addressing specific physical considerations can potentially enhance their sexual experiences. Streur CS, Schafer CL, Garcia VP, et al. "I Tell Them What I Can …
Abstract Objective: The aim of this paper was to examine sexual knowledge, concerns and needs of youth with spina bifida (SB) to inform the medical community on ways to better support their sexual health.
Data on sexual function of men with spina bifida (SB) is limited. We aimed to assess sexual activity and erectile dysfunction (ED) in a large internat…
Spina bifida impacts the sexual function of both men and women. Future studies should seek a better understanding of female sexual function and treatment, use validated questionnaires appropriately, and ultimately create a validated sexual function questionnaire specific to this population.
More than half of sexually active women with spina bifida experience sexual dysfunction. Therefore, health-care providers should pay attention to the symptoms and their management.
After reviewing the literature, the authors summarize the available information regarding sexual function and sexual dysfunction in adult males with spina bifida, specifically focusing on sexuality education, relationship status/sexual activity, continence, penile rigidity, penile sensation, ability to orgasm, ability to ejaculate, quality of ejaculation and non-genital sexual contact.
After reviewing the literature, the authors summarize the available information regarding sexual function and sexual dysfunction in adult males with spina bifida, specifically focusing on sexuality education, relationship status/sexual activity, continence, penile rigidity, penile sensation, ability to orgasm, ability to ejaculate, quality of ejaculation and non-genital sexual contact.
This study looks at how young people with spina bifida talk about sexuality in the context of their disability with intimate partners. The study identifies ways to modify education provided by health care providers to increase confidence and ability around discussing issues of sexuality.
Given the paucity of research on the sexuality of women with spina bifida, the purpose of this exploratory qualitative study was to discover the perception of women with spina bifida of their sexuality, exposure to sex education, and personal sexual experiences.
Spina bifida impacts the sexual function of both men and women. Future studies should seek a better understanding of female sexual function and treatment, use validated questionnaires appropriately, and ultimately create a validated sexual function questionnaire specific to this population.
To conduct a systematic review of self-reported experiences of sexual function and dysfunction in individuals with spina bifida (SB).
Medical and surgical advances in the treatment of spina bifida (SB) have resulted in increasing numbers of patients reaching adulthood. As such, issues related to sexual maturity are being investigated to offer optimal healthcare to men with spina ...
Key Words Introduction Although commonly perceived by society and health care providers as asexual,1, 2, 3 women with disabilities in general, and those with spina bifida specifically, are interested in and engage in sex.
Objective: Data on sexual function of men with spina bifida (SB) is limited. We aimed to assess sexual activity and erectile dysfunction (ED) in a large international sample of men with SB.
Those with spina bifida need to be able to negotiate sexual desire, intimacy and sexual expression. They also need education about their sexual health and how to limit the negative outcomes of sexual activity related to sexually transmitted infections, unplanned pregnancy or sexual coercion, violence, abuse or exploitation.
Strengths & Limitations Although this research measured solo and partnered sexual behavior in large international sample of adults with spina bifida, it is limited by its cross-sectional retrospective design and non-clinical convenience sample.
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The aim of this paper was to examine sexual knowledge, concerns and needs of youth with spina bifida (SB) to inform the medical community on ways to better support their sexual health. As part of ...
After reviewing the literature, the authors summarize the available information regarding sexual function and sexual dysfunction in adult males with spina bifida, specifically focusing on sexuality education, relationship status/sexual activity, continence, penile rigidity, penile sensation, ability to orgasm, ability to ejaculate, quality of ...
Aug 27, 2025
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