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People.com Human Interest YouTuber Adalia Rose, Who Had Early-Aging Disorder, Dead at 15: 'She Touched Millions of People'
“She is no longer in pain and is now dancing away to all the music she loves,” a Facebook post announcing Adalia Rose’s passing read in part
By Olivia Jakiel January 13, 2022 06:00 PM
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YouTuber Adalia Rose, Who Had Early-Aging Disorder, Dead at 15: 'She Touched Millions of People'
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Adalia Rose Williams, a teen YouTuber who lived with Hutchinson-Gilford progeria syndrome, has died. She was 15 years old.
"January 12, 2022 at 7pm Adalia Rose Williams was set free from this world," a post on both her Instagram and Facebook accounts started. "She came into it quietly and left quietly, but her life was far from it. She touched MILLIONS of people and left the biggest imprint in everyone that knew her."
"She is no longer in pain and is now dancing away to all the music she loves," the post continued. "I really wish this wasn't our reality but unfortunately it is."
"We want to say thank you to everyone that loved and supported her. Thank you to all her doctors and nurses that worked for YEARS to keep her healthy. The family would now like to mourn this huge loss in private," the statement concluded.
According to the National Organization of Rare Disorders (NORD), "Progeria, or Hutchinson-Gilford progeria syndrome (HGPS), is a rare, fatal, genetic condition of childhood with striking features resembling premature aging." The organization notes that there are only around 400 children in the world living with progeria at any given time.
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Thousands of fans and followers issued their condolences to Williams' family, including designer Michael Costello , who designed a pair of custom made dresses for the teen in honor of her 13th birthday in 2019.
"My heart is broken," Costello captioned a collection of videos of the fashion-loving teen on Instagram. "I am at a loss for words and cannot stop crying. Adalia has been so special to every single person that she met. She was an angel."
RELATED VIDEO: 12-Year-Old with Rare Condition That Causes Rapid Aging Bonds With 334-Pound Weightlifter
Added Costello: "Despite the cards she was dealt with, she had the most positive attitude and such big dreams of helping everyone around her. I love you so much Adalia… Words cannot convey how much you've changed my life. I will miss you dearly, friend, and I promise to cherish all the wonderful memories we've had together."
"It was the cutest. She was so adorable and so sweet," Costello told PEOPLE about meeting Williams for the first time in December 2019.
Williams was known for her lively and spunky personality, love for all things fashion, makeup tutorials, and other YouTube videos that showcased her day-to-day life.
She had a large following on all of her social media platforms, with almost three million subscribers on YouTube and over 380 thousand followers on Instagram, and made a lasting imprint on all of the lives she touched.

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A memorial service has been held for 15-year-old YouTuber Adalia Rose Williams, who passed away earlier this month.
The "Celebration of Life" took place on Sunday at the Weed Corley Fish Funeral Home in Austin, Texas. The service was recorded and streamed live on all of Williams' social media platforms for those who could not attend.
In an obituary, Williams —who lived with a rare genetic disorder called Hutchinson-Gilford Progeria Syndrome—was described as a "soul larger than life."
The 15-year-old was "set free from this world" on January 12, 2022, surrounded by her family who loved her. "Her loss is felt around the world," the obituary read.
Rose had amassed nearly three million subscribers on her YouTube channel, with which she documented her life and struggles with progeria. The condition essentially causes children to age rapidly.
Williams is survived by her mother Natalia Pallante and father Adrien Williams, as well as her siblings Marcelo, Niko and Emiliano Pallente, and Legend, Sydney and Gunner Williams.
"Few people have touched as many lives in so short a time as did Adalia Rose," a friend of the family, Jon Taylor, wrote in the obituary.
"Born December 10, 2006, her infectious laugh and beautiful smile transcended her struggles and brought strength to so many through her far reaching and authentic presence.
"Those that had the great fortune to know Adalia will always remember the feisty girl that loved so deeply and found joy in the smallest moments of life."
As Taylor noted in the obituary, many of Williams' YouTube videos ended with her saying, "Thank you for watching" and "I love you guys."
"She dances, she cries, she laughs, and she loves, a girl so free, a true friend's story so touching," Taylor wrote. "To be in her presence is the feeling of a warm hug, To the world she'd say, 'Thank you so much for watching.'"
Children with progeria appear to be healthy at birth but usually begin to show signs of rapid biological aging within the first two years of their life.
The genetic condition is very rare, affecting only around one in 20 million people worldwide, according to the Cleveland Clinic.
The disorder is caused by a mutation in a single gene known as lamin A (LMNA) that makes a protein necessary for holding the center—or nuclei—of cells together.
When this gene is mutated, it produces an abnormal form of the LMNA protein called progerin, which makes cells unstable and results in the rapid aging seen in progeria.

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The BBC is not responsible for the content of external sites. View original tweet on Twitter
The BBC is not responsible for the content of external sites. View original tweet on Twitter
YouTuber Adalia Rose has died at the age of 15 from a rare genetic condition.
The US teenager was diagnosed with Hutchinson-Gilford progeria, also known as Benjamin Button disease, when she was three months old.
It's a rare fatal condition which causes problems with growth and features which resemble early ageing.
In an Instagram post Adalia's family said she "touched millions of people and left the biggest imprint".
Adalia, from Texas, had almost three million YouTube subscribers and shared different tutorials, as well what it was like to live with the condition.
"She came into it quietly and left quietly, but her life was far from it," said her family in the post.
"She is no longer in pain and is now dancing away to all the music she loves. I really wish this wasn't our reality but unfortunately it is.
"We want to say thank you to everyone that loved and supported her. Thank you to all her doctors and nurses that worked for YEARS to keep her healthy."
About 500 children around the world are affected by Hutchinson-Gilford progeria. People with the condition have an average life expectancy of 13 years.
In a 2018 interview her mum Natalia Pallante said: "When Adalia was born, I think it was she was like a month old and [the doctors] weren't happy with her growth,".
"My favourite thing about being her mom is just watching her grow and seeing just how different she is from everyone.
"Adalia has changed my life completely," she added. "It's not like I was hateful but I wasn't nice to myself. I wasn't thankful. I didn't realise what life was until she was born."
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