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Terri-Ann Williams, Digital Health & Fitness Reporter
A TEENAGER has become one of the youngest people ever to die of bowel cancer after complaining she had an “upset tummy”.
Charlotte Simpson died months after turning 18 after she was diagnosed with stage four bowel cancer.
Charlotte was about to start her second year A-level studies and had a happy life with boyfriend Scott Dickinson, 19 and her family, mum Sarah, 46, dad David 48, and brother Elliot, 15.
In October the teenager started to complain of an extreme upset stomach.
She was diagnosed with the cancer two weeks before her 18th birthday and four months later, on May 22, she died at her family home in Whiteley, Hampshire.
Charlotte's mum Sarah has now praised her daughter and said she had an “amazing attitude” through the whole thing.
She said: “I couldn’t believe someone so young could be diagnosed with a disease you associate with older people.
“It felt like it was just rotten luck, but Charlotte’s whole attitude from the start was amazing.”
Bowel cancer is the second deadliest cancer in the UK, and the fourth most common form of the disease.
Yet, the disease can be cured if it's caught early enough.
That's why The Sun launched the No Time 2 Lose campaign to raise awareness of the signs and symptoms of the disease, and call on the Government to lower the screening age in England from 60 to 50 - a move they agreed to within months of the campaign's launch.
Charity Bowel Cancer UK said Charlotte was one of just three 15 to 19 year olds on average diagnosed annually with the disease.
It's Never Too Young campaign, aims to remind people that you can get bowel cancer any age, despite the disease being more likely over the age of 50. Around 2,500 people under 50 are diagnosed each year.
Bowel cancer is where the disease starts in the large intestines.
It's also referred to as colon or colorectal cancer, because it can also affect the colon and rectum.
Most bowel cancers develop from pre-cancerous growths, called polyps.
Not all will turn cancerous, but if your doctor finds any, they will tend to remove them to prevent cancer.
Bowel cancer is the fourth most common form of the disease in the UK, with 42,000 people diagnosed every year, according to Bowel Cancer UK.
More than 94 per cent of new cases are in people over the age of 50, while nearly 59 per cent are in the over 70s.
But bowel cancer can affect anyone, of any age with more than 2,500 cases diagnosed in people under the age of 50 each year
As soon as Charlotte was diagnosed, mum Sarah said she immediately asked when she could start treatment.
“All she wanted to know was if she could still have babies”, Sarah said.
“It was an absolute nightmare. Every day I would think, ‘This can’t be real.'”
Last October Charlotte started to suffer with stomach ache and nausea.
Mum Sarah already suffers with Coeliac and had thought her daughter may have developed the condition.
Charlotte was given a blood test which revealed she was anaemic and so she was prescribed iron tablets.
Sarah said the tablets “made no difference whatsoever”.
By mid-December Sarah complained to the GP as she was becoming increasingly worried about her daughter.
“They told us it would be extremely rare for it to be anything serious – one GP said if she was 50 or 60 they’d be worried, but she wasn’t.
“But when she started being sick after every meal I knew enough was enough."
Charlotte was sick all through the Christmas period and was taken to Portsmouth Queen Alexandra Hospital twice because she was in so much pain.
On both occasions doctors suggested Charlotte was suffering with Crohn’s or a bowel infection.
On January 16 she was referred for a colonoscopy.
It was like an out of body experience – it’s felt like that ever since. I can still see Charlotte’s face. She went bright red. She knew then it was serious.
Sarah said she knew from the way the doctors looked that “it wasn’t going to be good”.
“They weren’t able to perform the procedure.
“They told us there was a blockage. I knew from the look on their faces that the news wasn’t going to be good, as they went ghostly white.
“They sat us down and said there was a very high chance Charlotte had cancer, to which she replied, ‘Don’t be silly, I’m only 17. I’m not going to have cancer’.”
That same evening Charlotte was given MRI and CT scans.
Five days later the family returned to see a specialist and it was then that they were told that Charlotte had stage four bowel cancer which had spread to her lymph nodes and stomach.
“It was like an out of body experience – it’s felt like that ever since. I can still see Charlotte’s face. She went bright red. She knew then it was serious.”
On February 4, Charlotte celebrated her landmark 18th birthday before beginning treatment.
First she enjoyed a family dinner at The Ivy restaurant, in Winchester, Hampshire, before being thrown a surprise slumber party by six of her nearest and dearest friends.
On February 5, Charlotte began a combination of chemotherapy and immunotherapy – a drug treatment that encourages the immune system to fight cancerous cells.
Every two weeks Charlotte would go to Southampton General Hospital for treatment.
She would also have two days of treatment at home using a chemotherapy pump.
Sarah said Charlotte was really “positive and brave” and would tell her friends she would beat the cancer.
“She described the chemotherapy as a ‘hangover without the partying,’ and said she felt like spaghetti all the time, she was so weak and her body was so floppy. But by mid-March, she was in absolute agony, completely bloated and unable to keep any food down. ”
That month a scan revealed that Charlotte’s tumour had spread.
She had a colostomy performed at the same hospital, where part of her colon was bypassed through an opening in her tummy.
In hospital for the next 10 days, sadly, Sarah said Charlotte never recovered.
“I was by her side 24/7 from then on,” she explained. “I did everything for her, including changing the stoma bag – she couldn’t look at it.”
By the beginning of April Charlotte’s condition took a turn.
Sarah said: “Charlotte had started sicking up volumes of black liquid. I remember after it happened she looked at me and we knew it was bad.
Returning to hospital for a CT scan at the end of April, it was Sarah who broke the devastating results to Charlotte.
“After the CT scan, she asked the consultant to give the news to us,” she said.
“She wanted her mum and dad to tell her the results. They told us the cancer had spread extensively and there was nothing they could do. Her body hadn’t responded to the chemo at all."
She continued: “It was three months of pure hell that never stopped. We walked back in and I looked at Dave, not knowing what to say.
“Charlotte looked at me and said, ‘I’m going to die aren’t I?’ I replied, ‘They just can’t do anything, love.'”
Charlotte was unable to see any of her friends as the coronavirus pandemic started to unfold and at the beginning of May her parents decided she should spend her final days at home.
Sarah said: “We didn’t want her to be in the hospital.
“We wanted her to see family, friends and her beloved Cockapoo dog, Chester.”
The family set Charlotte’s bedroom up in the ground floor back room.
Charlotte was able to overlook the garden, where friends and members of her extended family gathered to say goodbye.
After two weeks at home, surrounded by her family on May 22, Charlotte passed away.
Sarah added: “We’d had beautiful sunshine for the past few weeks and suddenly the weather changed.
“We would always say, ‘Love you. Love you more. Love you most,’ and that’s the last thing I said to her. Five hours later, at 10.50am, she went.”
She continued: “She knew we were with her and, in a way, there was a sense of relief that she was no longer suffering.
“But at the same time, we couldn’t process it. Just four months after being told she had the cancer, she was gone. How could it happen to someone so healthy and young?
“I always thought age was on our side, but it wasn’t. Doctors told us that the fact her cells with still so young meant the cancer could divide quicker.”
On June 11, Charlotte was laid to rest.
Mum Sarah now says every day is a struggle.
Sarah continued: “Part of me died with Charlotte the day we lost her – the whole family is broken. I don’t know how to keep going and dread waking up in the morning.”
“It’s changed who I am and I’m now petrified of something like this happening to Elliott.”
But, despite her heartbreak, Sarah is determined to fulfil her daughter’s one last wish – to raise awareness of teenage bowel cancer.
“Charlotte made everybody she knew feel special, she was so lovely and kind, and I don’t want to see other families grieving like us.”
Generally seen as an older person’s cancer, Genevieve Edwards, Chief Executive at Bowel Cancer UK, confirmed that Charlotte was one of the youngest people she had ever known to have died from the disease.
She said: “We have seen a rise in bowel cancer cases in under 50s in recent years, which is incredibly concerning, and more research is needed to help us fully understand the reasons behind this increasing trend.
“Charlotte’s diagnosis remains devastating for her family and friends and we’re really grateful to them for sharing her story and helping to raise awareness of this deadly disease.”
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