Desire De Luca
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Desire De Luca
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Desirè De Luca is an actress, known for D.N.A.: Decisamente non adatti (2020).
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D.N.A.: Decisamente non adatti
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Выбрать язык русский азербайджанский аймара албанский амхарский арабский армянский ассамский африкаанс бамбара баскский белорусский бенгальский бирманский болгарский боснийский бходжпури валлийский венгерский вьетнамский гавайский галисийский греческий грузинский гуарани гуджарати датский догри зулу иврит игбо идиш илоканский индонезийский ирландский исландский испанский итальянский йоруба казахский каннада каталанский кечуа киргизский китайский (традиционный) китайский (упрощенный) конкани корейский корсиканский коса креольский (гаити) крио курдский (курманджи) курдский (сорани) кхмерский лаосский латинский латышский лингала литовский луганда люксембургский майтхили македонский малагасийский малайский малаялам мальдивский мальтийский маори маратхи мейтейлон (манипури) мизо монгольский немецкий непальский нидерландский норвежский ория оромо панджаби персидский польский португальский пушту руанда румынский самоанский санскрит себуанский сепеди сербский сесото сингальский синдхи словацкий словенский сомалийский суахили сунданский таджикский тайский тамильский татарский телугу тигринья тсонга турецкий туркменский узбекский уйгурский украинский урду филиппинский финский французский фризский хауса хинди хмонг хорватский чви чева чешский шведский шона шотландский (гэльский) эве эсперанто эстонский яванский японский
Click on the resources listed below to download the full versions of Biogen’s materials.
Institute for Population and Precision Health (IPPH)
Fox Chase Cancer Center - Temple Health
Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. Be the Breakthrough: Understanding Clinical Trials
Lung Cancer Initiative of North Carolina
Click on the resources listed below to view the full versions of PRA’s materials.
Visit North Carolina Clinical Research’s website
Written by Melissa E. Daley, Communications & Marketing Manager | mdaley@ciscrp.org
“I am a lawyer, my husband is a pathologist, and I had no idea that there were hospitals that just treated cancer,” says Desiree De Luca-Johnson, an attorney, breast cancer survivor and patient advocate.
Desiree’s road to being a clinical trial participant is reflective of her legal training. “I made a plan. I had a white board. I decided that if ‘A’ happens, then we would move on to ‘B’. I’m passionate about clinical trials.”
Desiree was diagnosed while living in a military community in Virginia, and her husband was deployed. “I was exhausted, and literally crawling upstairs to put my kids to bed,” Desiree recalls. Her oncologist at the time was a military physician and the treatment plan recommended for Desiree was conservative in nature. She was not told about clinical research as a healthcare option.
“I got 200 pages of where I could get free makeup and wigs, and not one page on clinical trials,” says Desiree. “I discovered that oncologists have different attitudes about treating cancer and I wish someone had told me about this. My oncologist was not aggressive about different treatment options.” Desiree recalls she was willing to deal with a higher level of side effects when her doctor told her she had an 80%/20% chance of survival.
“I was suicidal because of the anxiety. I found out (in addition to the breast cancer), I had a benign brain tumor,” says Desiree.
When she posed a question about clinical trials, Desiree’s doctor told her she was not sick enough to be in a clinical trial.
Desiree’s background as an attorney had honed her research and investigative skills. She decided to take definitive action.
“I made lists of cancer hospitals. I investigated their websites. I learned about ClinicalTrials.gov , which is a hard website to navigate. My husband was opposed to me doing a clinical trial, so I was doing this research all alone. But it was keeping me alive,” says Desiree. (Desiree’s husband ultimately embraced her decision to participate in clinical trials).
Her oncologist in Virginia was not supportive of Desiree’s decision, and voiced a level of concern about clinical trial participation. Undeterred, Desiree pursued clinical research options and other avenues for her health and wellness.
“The most important thing about choosing to enroll in a clinical trial, for me, were childcare and the affiliated travel costs,” says Desiree. “I became my own doctor, in a sense. I read that doing yoga was good when you have cancer, so I did yoga. I read that exercise was good, so I hired a health coach,” says Desiree.
And, she participated in clinical trials. “I did an early-stage trial,” says Desiree. “The big barrier, again, was childcare. The navy has a program so my husband didn’t have to deploy during my treatment, so he could take care of our children.”
Desiree’s sister, who lives in Boston, recommended looking at Massachusetts General Hospital for relevant clinical trials to join. Desiree enrolled in a one-year treatment clinical trial. At the end of this clinical study, it was deemed a negative trial, meaning that the results demonstrated that the new treatment was inferior to standard treatment. (1) Overall, the experience was still a positive one for Desiree.
“I was grateful to be at a top research hospital. I was able to feel safe for a year – it gave me some time to breathe and research my options.”
“Through my clinical trial participation, I got access to other treatments for other conditions, such as bone density, and I was able to access other clinical trials,” says Desiree. Her research oncologist became her primary oncologist.
“Now I am in a trial to monitor for re-occurrence and I can make an action plan for quality of life,” says Desiree.
Desiree and her children have relocated to her home state of Vermont, in order to be closer to Massachusetts General Hospital, the clinical trial and family. “The relationships really matter,” says Desiree.
Desirae’s clinical research journey has brought her full circle, professionally. She currently works full-time at BreastCancerTrials.org as Outreach and Operations Manager.
Desiree advises people considering clinical research that, “When it comes to your oncologist, it’s a fiduciary relationship. It was my job to know the consequences of the decisions I was making to help them reach their goals.
To search for medical conditions in a specific location visit our Search Clinical Trials page.
To stay informed about clinical trials, visit our Resources page.
The Center for Information and Study on Clinical Research Participation, Inc. is a non-profit 501(c)(3) organization advocating for clinical research education.
Click on the resources listed below to view the full versions of LCI’s materials.
Download the handout below in English or Spanish
Missy Hansen MSN, APRN, CPNP, CPHON, joined ICON in 2019 as a pediatric strategy liaison. She has 25+ years of experience as a pediatric nurse practitioner, including 17+ years in pediatric hematology/oncology at Children’s Minnesota, the largest hematology/oncology service line in the region, providing care for infants through young adults diagnosed with hematologic and/or oncology conditions. Ms. Hansen gained expertise working in inpatient, outpatient, and urgent care type settings. Ms. Hansen has in-depth experience working with the Children’s Oncology Group—the largest consortium with the most open pediatric studies around the world. She also has experience working with other consortia that conduct trials for pediatric to young adult patients.
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Fully supported English (United States) Partially supported Français (Canada) Français (France) Deutsch (Deutschland) हिंदी (भारत) Italiano (Italia) Português (Brasil) Español (España) Español (México)
Filmography
by Year
by Job
by Ratings
by Votes
by Genre
by Keyword
Did You Know?
Personal Quotes
Trivia
Trademark
Photo & Video
Photo Gallery
Trailers and Videos
Opinion
Awards
Related Items
Credited With
News
External Sites
Professional Services
Get more at IMDbPro
Desirè De Luca is an actress, known for D.N.A.: Decisamente non adatti (2020).
Other Works
|
Publicity Listings
|
Official Sites
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One Liberty Square Suite 1100 Boston, MA 02109
(617) 725-2750
877-MED-HERO (633-4376)
info@ciscrp.org
© 2022 CISCRP | All Rights Reserved
Выбрать язык русский азербайджанский аймара албанский амхарский арабский армянский ассамский африкаанс бамбара баскский белорусский бенгальский бирманский болгарский боснийский бходжпури валлийский венгерский вьетнамский гавайский галисийский греческий грузинский гуарани гуджарати датский догри зулу иврит игбо идиш илоканский индонезийский ирландский исландский испанский итальянский йоруба казахский каннада каталанский кечуа киргизский китайский (традиционный) китайский (упрощенный) конкани корейский корсиканский коса креольский (гаити) крио курдский (курманджи) курдский (сорани) кхмерский лаосский латинский латышский лингала литовский луганда люксембургский майтхили македонский малагасийский малайский малаялам мальдивский мальтийский маори маратхи мейтейлон (манипури) мизо монгольский немецкий непальский нидерландский норвежский ория оромо панджаби персидский польский португальский пушту руанда румынский самоанский санскрит себуанский сепеди сербский сесото сингальский синдхи словацкий словенский сомалийский суахили сунданский таджикский тайский тамильский татарский телугу тигринья тсонга турецкий туркменский узбекский уйгурский украинский урду филиппинский финский французский фризский хауса хинди хмонг хорватский чви чева чешский шведский шона шотландский (гэльский) эве эсперанто эстонский яванский японский
Click on the resources listed below to download the full versions of Biogen’s materials.
Institute for Population and Precision Health (IPPH)
Fox Chase Cancer Center - Temple Health
Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. Be the Breakthrough: Understanding Clinical Trials
Lung Cancer Initiative of North Carolina
Click on the resources listed below to view the full versions of PRA’s materials.
Visit North Carolina Clinical Research’s website
Authored by: Melissa E. Daley, Communications & Marketing Manager, CISCRP
“I am a lawyer, my husband is a pathologist, and I had no idea that there were hospitals that just treated cancer,” says Desiree De Luca-Johnson, an attorney, breast cancer survivor and patient advocate. At the age of 40, just when she was ready to go back to work after staying home with her young children, Desiree was diagnosed with breast cancer. Desiree’s road to being a clinical trial participant is reflective of her legal training. “I made a plan. I had a white board. I decided that if ‘A’ happens, then we would move on to ‘B’. I’m passionate
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